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| Executive Editor.....Anne-Merete Robbs CEO..............Stan Swartz | ||||||||||||||||||||||
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| "Dr. Vollmer is close to a MS cure..but..he needs you to help by joining a trial!" | ||||||||||||||||||||||
Stan Swartz, CEO, The MD Health Channel "Plus...You'll receive all medication and study based procedures at NO CHARGE" . |
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| "MY EDUCATIONAL VIDEO ON MS" | ||||||||||||||||||||||
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| "THE VOLUNTARY SUSPENSION OF TYSABRI BY BIOGEN IDEC AND ELAN" | ||||||||||||||||||||||
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| Timothy L. Vollmer M.D. Director, Barrow NeuroImmunology Program Barrow Neurological Institute St. Joseph's Hospital and Medical Center |
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Tuesday
test
MSers NEWS
SOURCES: GREAT
http://www.msif.org
http://www.ncbi.nlm.nih.gov/gquery/?term=multiple+sclerosis%2Cjuly%2C2013
http://www.ncbi.nlm.nih.gov/pubmedhealth/?term=multiple%20sclerosis,july,2013
http://www.ncbi.nlm.nih.gov/gquery/?term=multiple+sclerosis%2Cjuly%2C2013
http://www.ncbi.nlm.nih.gov/pubmedhealth/?term=multiple%20sclerosis,july,2013
Friday
ng-SCOOP+ Malverne, W.H. merchants honored by officials
Hempstead Town Supervisor Kate Murray, Councilman Ed Ambrosino and
Town Clerk Nasrin Ahmad congratulated West Hempstead Chamber of Commerce
representative Patricia LoCurcio and Kathi Monroe, Secretary of the
Malverne Merchants and Professional Association and sole owner of
Harmony Acupuncture of Lynbrook, at the 2013 Nassau Council of Chambers
of Commerce Small Businessperson of the Year and Legislative Breakfast
at the Crest Hollow Country Club in Woodbury on October 18.
LoCurcio — despite being forced to retire at the age of 30 after being diagnosed with Multiple Sclerosis — has continued to be an active member of her community. She helped start the Long Island Breakfast Club to help residents find employment, and volunteers her time with “Home Free Home,” an organization that helps build accessible homes for people with disabilities.
Monroe also serves her community as a small businesswoman by using her acupuncture to help patients achieve and maintain their optimal state of health.
LoCurcio — despite being forced to retire at the age of 30 after being diagnosed with Multiple Sclerosis — has continued to be an active member of her community. She helped start the Long Island Breakfast Club to help residents find employment, and volunteers her time with “Home Free Home,” an organization that helps build accessible homes for people with disabilities.
Monroe also serves her community as a small businesswoman by using her acupuncture to help patients achieve and maintain their optimal state of health.
Wednesday
Advancement in stem cell therapies show potential for multiple sclerosis care
A report outlining the progress of stem cell therapy - and new methods which could lead to an eventual cure for multiple sclerosis and other degenerative diseases - has been published today.
More than 100,000 people in the UK are affected by multiple sclerosis (MS), with 2.5 million people, mostly young adults, affected worldwide.The cause of multiple sclerosis is yet unknown, but is thought to occur as a result of brain cells becoming damaged, with conducting fibres in the brain being attacked by the body's immune system.
The immune system damages the protective insulating layer called a 'myelin sheath', which disrupts the signals travelling along nerve fibres and can partially or completely disrupt transmission.
Due to the nature of our central nervous system, the symptoms of MS in each instance can vary according to which nerves are damaged.
MS costs the EU economy €9 billion each year, largely due to the progressively disabling nature of the disease. Until recently, therapy has focused upon using stem cells to replace oligodendrites, cells which produce myelin. This approach, however, has had limited application in the treatment of MS.
The authors of the paper published in the Lancet, Professor Neil Scolding and a team from Frenchay Hospital in Bristol, UK, have suggested that new hope may lie in an increasingly advanced understanding of stem cells and their reparative properties.
Click here to read the full article from informationdaily.com
Saturday
GOOD STORIES: FEATURED ARTICLE
8 Ways to Live Better With MS
Managing your life with MS isn't just about dealing with the symptoms you have right now. It's about thinking through what could happen in future -- the possible effects on your job, family, and finances -- and preparing for them.
FREE.... MIGRAINES
Thursday
POSSIBLY CAN'T USE FOR TIM VOLLMER'S COLUMN*** STAN READ AND DECIDE
SEARCHING FOR NEW WAYS TO TREAT MS
Dr. Tim Vollmer, co-director of the Rocky Mountain MS Center at Anschutz Medical Campus, has recently launched an investigator-initiated study to explore the use of combination therapies for the treatment of multiple sclerosis. Combination therapy is a strategy that uses existing drugs in combination
with each other to achieve better disease management with fewer side effects. This approach has been used very successfully in other diseases, for example HIV/AIDS, to help people attain a “disease-free” state. The drug combination to be investigated in this study includes Copaxone, an injectable therapy used to treat MS and Rituxan, an intravenous therapy used to treat certain lymphomas and rheumatoid arthritis. Both drugs have been in use for a long time and have excellent safety profiles. They also have different effects on the immune system. Rituxan is an anti-B cell therapy and Copaxone encourages the development of new regulatory B cells. The theory behind using the drugs in combination is that Rituxan will deplete the destructive B cells and Copaxone will generate new B cells. Using this sort of one-two punch, we might be able to reprogram the immune system in way that is more effective than the treatments now available.
Participants in the study must be between the ages of 18 and 55 and live in Colorado or be able to visit Colorado frequently. They must be diagnosed with CIS (clinically isolated syndrome), relapsing-remitting MS, or secondary- progressive MS and have evidence of a relapse in the past twelve months.
Study participants will receive two infusions of either Rituxan or placebo
at the start of the trial and then begin daily Copaxone injections. MRIs will be done every six months. Participants will be followed with monthly phone “visits” and with office exams and lab tests every three months so their progress can be carefully monitored. If someone has a relapse or begins to experience new disease activity the study stops and a different treatment is started. In the past few years there have been several small studies that explored the use of Rituxan as a treatment for MS and the results were clearly positive. The drug is not FDA-approved for MS, however, which means that insurance companies usually won’t pay for its use. Participants in this clinical trial will receive the drug at no cost to them or their insurance company.
Dr. Tim Vollmer, co-director of the Rocky Mountain MS Center at Anschutz Medical Campus, has recently launched an investigator-initiated study to explore the use of combination therapies for the treatment of multiple sclerosis. Combination therapy is a strategy that uses existing drugs in combination
with each other to achieve better disease management with fewer side effects. This approach has been used very successfully in other diseases, for example HIV/AIDS, to help people attain a “disease-free” state. The drug combination to be investigated in this study includes Copaxone, an injectable therapy used to treat MS and Rituxan, an intravenous therapy used to treat certain lymphomas and rheumatoid arthritis. Both drugs have been in use for a long time and have excellent safety profiles. They also have different effects on the immune system. Rituxan is an anti-B cell therapy and Copaxone encourages the development of new regulatory B cells. The theory behind using the drugs in combination is that Rituxan will deplete the destructive B cells and Copaxone will generate new B cells. Using this sort of one-two punch, we might be able to reprogram the immune system in way that is more effective than the treatments now available.
Participants in the study must be between the ages of 18 and 55 and live in Colorado or be able to visit Colorado frequently. They must be diagnosed with CIS (clinically isolated syndrome), relapsing-remitting MS, or secondary- progressive MS and have evidence of a relapse in the past twelve months.
Study participants will receive two infusions of either Rituxan or placebo
at the start of the trial and then begin daily Copaxone injections. MRIs will be done every six months. Participants will be followed with monthly phone “visits” and with office exams and lab tests every three months so their progress can be carefully monitored. If someone has a relapse or begins to experience new disease activity the study stops and a different treatment is started. In the past few years there have been several small studies that explored the use of Rituxan as a treatment for MS and the results were clearly positive. The drug is not FDA-approved for MS, however, which means that insurance companies usually won’t pay for its use. Participants in this clinical trial will receive the drug at no cost to them or their insurance company.
FORMER BRISTOL-MYERS SQUIBB EXECUTIVE SENT TO PRISON FOR INSIDER TRADING
When Bristol-Myers Squibb ($BMY) wanted to take over a company, execs turns to Robert Ramnarine in their Princeton, NJ, office to do the confidential due diligence work on the target company's pension plan. But his plan for feathering his own nest with the insider information he picked up is leading to early retirement--in prison. Ramnarine was sentenced to one year and one day of jail time after pleading guilty to one count of securities fraud related to the ex-exec's purchase of options on Amylin stock as Bristol-Myers readied its $5.3 billion buyout last year. As Reuters reported, Ramnarine did a little online sleuthing on how insider trading is detected--evidently without realizing the Internet searches on insider trading can help make a case against you.
READ MORE
When Bristol-Myers Squibb ($BMY) wanted to take over a company, execs turns to Robert Ramnarine in their Princeton, NJ, office to do the confidential due diligence work on the target company's pension plan. But his plan for feathering his own nest with the insider information he picked up is leading to early retirement--in prison. Ramnarine was sentenced to one year and one day of jail time after pleading guilty to one count of securities fraud related to the ex-exec's purchase of options on Amylin stock as Bristol-Myers readied its $5.3 billion buyout last year. As Reuters reported, Ramnarine did a little online sleuthing on how insider trading is detected--evidently without realizing the Internet searches on insider trading can help make a case against you.
READ MORE
Wednesday
coming tomorrow style
"WE'RE PUTTING TOGETHER A STORY FOR YOU TO READ TOMORROW ABOUT A HUGE COMMERCIAL MEDICAL MARIJUANA GROWING FIELD ALONG WITH INFO FROM A NEUROLOGIST THAT'S VISITED IT! IT WILL ALL BE IN TOMORROW'S NEWS!"
LOOK AT THE PHOTO BELOW!
I'ts the growing field that the Neurologist is going to be telling you about tomorrow on MSnewsChannel.com
THIS IS THE MEDICAL MARIJUANA GROWING FIELD WE'RE WRITING ABOUT FOR OUR STORY IN TOMORROW'S NEWS ON MSNC (MSnewsChannel.com)
PS....PLEASE SHARE THIS STORY WITH ALL OF YOUR FRIENDS! PART OF MY JOB IS TO HELP GET MORE MSers LIKE MYSELF TO VISIT OUR www.MSnewsChannel.com every day!
Sunday
THIS SITE IS CURRENTLY UNDER CONSTRUCTION
Saturday
When Your Insurance Company Won't Pay: 12 Tips...MORE
z1. Don't assume that the first no you receive is final. About 10 percent of all insurance claims are unjustly denied but less than 1 percent of people making insurance claims even question their insurer when their claim is denied. The majority of policyholders who do contest their cases either win their cases or improve their settlements.
2. Insist on a written explanation.
Most state laws require insurance companies to provide written explanations of claim denials. Failure to comply may constitute an illegal practice by the insurer.
z1. Don't assume that the first no you receive is final. About 10 percent of all insurance claims are unjustly denied but less than 1 percent of people making insurance claims even question their insurer when their claim is denied. The majority of policyholders who do contest their cases either win their cases or improve their settlements.
2. Insist on a written explanation.
Most state laws require insurance companies to provide written explanations of claim denials. Failure to comply may constitute an illegal practice by the insurer.
Friday
View Interactive Flash Program: "Experts SpeakOut - Side Effect Considerations with
[University of Cincinnati]
Disease-Modifying Therapies"
Download CME Monograph (PDF)
Download Program Presentation Slides (PPT)
[University of Cincinnati]
Disease-Modifying Therapies"
Download CME Monograph (PDF)
Download Program Presentation Slides (PPT)
Sunday
Saturday
Avonex & Rebif(interferon beta-1a) Information: What is the most important information I should know about interferon beta-1a?
Contact your doctor immediately or seek emergency medical attention if you begin feeling depressed or anxious or if you have thoughts of suicide.
Thursday
Overview of MS: U.S. Pharmacist
This teaching module reviews the epidemiology, etiology, pathophysiology and clinical presentation of multiple sclerosis, disease-modifying drugs used to treat MS, symptomatic problems associated with MS and therapies for their management, and the role of pharmacists in care for patients with MS. Goal:To describe the epidemiology, etiology, pathophysiology, and clinical presentation of multiple sclerosis (MS) and discuss the various products used to treat acute exacerbations, slow the progression of the disease, and minimize symptomatic problems.
MORE: U.S. Pharmacist
MORE: U.S. Pharmacist
"Types of Multiple Sclerosis"....Multiple Sclerosis Center at Johns Hopkins
"Constipation"....Brigham and Women's is a teaching hospital of Harvard Medical School
Definition...Causes...Risk Factors...Symptoms...Diagnosis...TreatmentCLICK FOR MS INFO FROM: Brigham and Women's Hospital
"WHAT IS MS".....UCSF Multiple Sclerosis Center
"Multiple sclerosis (MS) is a chronic, often disabling disease of the central nervous system (CNS). Converging lines of evidence suggest that the disease is caused by a disturbance in immune function. This disturbance permits cells of the immune system to attack myelin, the insulating sheath that surrounds the nerve fibers (axons) located in the CNS (i.e., the brain and spinal cord). When myelin is damaged, electrical impulses cannot travel quickly along nerve fiber pathways in the brain and spinal cord. Disruption of electrical conductivity results in fatigue and disturbances of vision, strength, coordination, balance, sensations, and bladder and bowel function.
Why was this disease called multiple sclerosis?....>"MORE....UCSF Multiple Sclerosis Center
Why was this disease called multiple sclerosis?....>"MORE....UCSF Multiple Sclerosis Center
"HEALTH PSYCHOLOGY"....UCSF Multiple Sclerosis Center
"It is estimated that between 45% and 65% of all people with MS experience problems with memory, attention, word-finding, problem-solving, or other cognitive functions as a symptom of the disease. These cognitive changes can vary considerably from one person to another, both in type and severity. There is very little relationship between the severity of physical symptoms and the severity of cognitive problems. One person may have severe physical symptoms but no problems with cognition. Another person may be very physically fit but have severe problems with thinking and remembering."MORE....UCSF Multiple Sclerosis Center
Assistive Devices and Equipment for MS
A Pacemaker for the Brain...MS
"A boy walks down a hospital corridor. He swings his arms. His gait is perfectly unremarkable. And that's remarkable. Because a few weeks earlier, he'd been unable to walk at all. The difference between then and now is a remarkable new surgical procedure that has been likened to implanting a "pacemaker" in the brain."THE CLEVELAND CLINIC
Stress and MS: THE CLEVELAND CLINIC
Stress refers to two different things: situations that trigger a reaction (physical and/or emotional) and the response to those triggers. Each individual’s experience of stress depends on the nature of the stressor and how the stressor is perceived.
Having a chronic illness can cause and influence stress. MS is no exception. Individuals with MS have the difficult challenge of dealing with:
* The uncertainty of diagnosis (before MS diagnosis, living with symptoms, and no diagnosis)
* The unpredictability of the disease
* The emergence of symptoms (having visible signs of the disease, such as the need for a cane or wheelchair)
* Concerns about finances and job situation
* Dependence on others and not being able to care for others (such as a spouse and children) as before
* The need to modify activities and surroundings to accommodate changes due to MS
* Symptoms that are unexplainable and not understandable
What are the warning signs of stress?
Responses to stressors include physical changes, and emotional and behavioral responses.
Emotional warning signs
* Anger
* Inability to concentrate
* Unproductive worry
* Sadness
* Frequent mood swings
Physical warning signs
* Stooped posture
* Sweaty palms
* Chronic fatigue
* Weight gain or loss
Behavioral warning signs
* Over-reacting
* Acting on impulse
* Using alcohol or drugs
* Withdrawing from relationships
What can I do to reduce stress?
* Keep a positive attitude.
* Accept that there are events that you cannot control.
* Be assertive instead of aggressive. "Assert" your feelings, opinions, or beliefs instead of becoming angry, combative, or passive.
* Learn relaxation techniques.
* Exercise regularly. Your body can fight stress better when it is fit.
* Eat well-balanced meals.
* Rest and sleep. Your body needs time to recover from stressful events.
* Don’t rely on alcohol or drugs to reduce stress.
How can I learn to relax?
There are a number of exercises that you can do to relax. These exercises include breathing, muscle and mind relaxation, relaxation to music, and biofeedback. A few that you can try are listed below. First, be sure that you have:
1. A quiet location that is free of distractions
2. A comfortable body position (Sit or recline on a chair or sofa.)
3. A good state of mind (Try to block out worries and distracting thoughts.)
Relaxation exercises
* 2-Minute relaxation — Switch your thoughts to yourself and your breathing. Take a few deep breaths, exhaling slowly. Mentally scan your body. Notice areas that feel tense or cramped. Quickly loosen up these areas. Let go of as much tension as you can. Rotate your head in a smooth, circular motion once or twice. (Stop any movements that cause pain.) Roll your shoulders forward and backward several times. Let all of your muscles completely relax. Recall a pleasant thought for a few seconds. Take another deep breath and exhale slowly. You should feel relaxed.
* Mind relaxation — Close your eyes. Breathe normally through your nose. As you exhale, silently say to yourself the word "one," a short word such as "peaceful" or a short phrase such as "I feel quiet." Continue for 10 minutes. If your mind wanders, gently remind yourself to think about your breathing and your chosen word or phrase. Let your breathing become slow and steady.
* Deep breathing relaxation — Imagine a spot just below your navel. Breath into that spot and fill your abdomen with air. Let the air fill you from the abdomen up, then let it out, like deflating a balloon. With every long, slow breath out, you should feel more relaxed.MORE: THE CLEVELAND CLINIC
Stress refers to two different things: situations that trigger a reaction (physical and/or emotional) and the response to those triggers. Each individual’s experience of stress depends on the nature of the stressor and how the stressor is perceived.
Having a chronic illness can cause and influence stress. MS is no exception. Individuals with MS have the difficult challenge of dealing with:
* The uncertainty of diagnosis (before MS diagnosis, living with symptoms, and no diagnosis)
* The unpredictability of the disease
* The emergence of symptoms (having visible signs of the disease, such as the need for a cane or wheelchair)
* Concerns about finances and job situation
* Dependence on others and not being able to care for others (such as a spouse and children) as before
* The need to modify activities and surroundings to accommodate changes due to MS
* Symptoms that are unexplainable and not understandable
What are the warning signs of stress?
Responses to stressors include physical changes, and emotional and behavioral responses.
Emotional warning signs
* Anger
* Inability to concentrate
* Unproductive worry
* Sadness
* Frequent mood swings
Physical warning signs
* Stooped posture
* Sweaty palms
* Chronic fatigue
* Weight gain or loss
Behavioral warning signs
* Over-reacting
* Acting on impulse
* Using alcohol or drugs
* Withdrawing from relationships
What can I do to reduce stress?
* Keep a positive attitude.
* Accept that there are events that you cannot control.
* Be assertive instead of aggressive. "Assert" your feelings, opinions, or beliefs instead of becoming angry, combative, or passive.
* Learn relaxation techniques.
* Exercise regularly. Your body can fight stress better when it is fit.
* Eat well-balanced meals.
* Rest and sleep. Your body needs time to recover from stressful events.
* Don’t rely on alcohol or drugs to reduce stress.
How can I learn to relax?
There are a number of exercises that you can do to relax. These exercises include breathing, muscle and mind relaxation, relaxation to music, and biofeedback. A few that you can try are listed below. First, be sure that you have:
1. A quiet location that is free of distractions
2. A comfortable body position (Sit or recline on a chair or sofa.)
3. A good state of mind (Try to block out worries and distracting thoughts.)
Relaxation exercises
* 2-Minute relaxation — Switch your thoughts to yourself and your breathing. Take a few deep breaths, exhaling slowly. Mentally scan your body. Notice areas that feel tense or cramped. Quickly loosen up these areas. Let go of as much tension as you can. Rotate your head in a smooth, circular motion once or twice. (Stop any movements that cause pain.) Roll your shoulders forward and backward several times. Let all of your muscles completely relax. Recall a pleasant thought for a few seconds. Take another deep breath and exhale slowly. You should feel relaxed.
* Mind relaxation — Close your eyes. Breathe normally through your nose. As you exhale, silently say to yourself the word "one," a short word such as "peaceful" or a short phrase such as "I feel quiet." Continue for 10 minutes. If your mind wanders, gently remind yourself to think about your breathing and your chosen word or phrase. Let your breathing become slow and steady.
* Deep breathing relaxation — Imagine a spot just below your navel. Breath into that spot and fill your abdomen with air. Let the air fill you from the abdomen up, then let it out, like deflating a balloon. With every long, slow breath out, you should feel more relaxed.MORE: THE CLEVELAND CLINIC
Alternative Therapies
What is Alternative Therapy?
AT HOME WITH MS
Botulinum Toxin Therapy for MS
TIPS: Parenting a Child with MS
CLICK HERE FOR TIPS Kids can get MS too and some of those people diagnosed as young adults actually had their initial symptoms much earlier. The majority of youngsters with MS, however, are between the ages of 10 and 17.